Who’s got it?

Come on own up who has got my mobile phone charger, I have a phone that’s as dead as a Dodo and  I know that I put the charger somewhere safe.

I am sure I remember thinking to myself that’s a good place to keep it, so in that case it must be really easy to find!!!!!!!!!!!!!!!!!!!!!!!!!!!

Cancel that I have just been in the kitchen to see how my lunch is progressing and there it is sat in my fruit bowl, well to be fair it is right under a socket so maybe there is a bit of logic.

Now I have a dilemma do I leave it in the fruit bowl as the chances of me remembering are now quite good , or do I do the sensible thing  and put it back in my office?

If we are not looking for the phone charger perhaps we could look for the cardigan that I bought for my granddaughter before Christmas. I think somewhere in this bungalow is a black hole that sucks in the thing you are looking for, if I am lucky it will spit them back after a couple of days.

But just occasionally the hole must be in league with Parky and keeps me looking and looking and LOOKING.

IS THIS A NEW FORM OF EXERSISE?

Boring Old F

Well its now 2011 and I am wondering what this New Year will bring, since doing this blog I have become more aware of what is happening in the world of Parkinson’s.

I know there are many others who find writing a blog beneficial, and so many people who make light of their problems.

I also realise that my family and friends had very little idea how I felt about living with My Mate Parky, and also think I have done them a great injustice by being so bolshie and insisting on doing things myself.

I promise this year I will learn to say PLEASE HELP ME, even though I know that it will be the hardest part of my coming to grips with living with Parky.

I am going to try and make my life as stress free as I possibly can, IS THAT POSSIBLE?????????????????

Perhaps if I didn’t start projects that I can’t finish, that might be a beginning.

I still want to do everything NOW, but who knows maybe I might get more enjoyment by not rushing in head first.

Who am I kidding; do I really think it is possible for me to be that sensible? I don’t want to end up as a boring old fffffffffff person.

Please Can I

Shake, Rattle and Roll Music Festival for Parkinson's

I want to go, but I can’t manage to get to Hollywood in time, and it’s all happening tomorrow. Well by the time I get this on line it will be today, Sunday.

I will be honest I don’t think my budget would have taken me there, but WOW could I have boogied.

I could have taken the place by storm; if nothing else I have a cute accent. I was born and raised in Lincolnshire, leaving it for London for a while, as far as I am concerned I don’t have an accent it’s all those other people that talk funny

I may have had to take Parky’s boots (the ones that have the weights in) with me, but that would not have stopped me I could have showed everyone how we Brits do things especially when we have to take along our uninvited guest. Well I think I may be wrong in saying that as I expect a good many of the people attending have their own version of MY MATE PARKY

So my regards to

for coming up with such a great idea.

I hope everyone has a fantastic time, don’t think of me sat at home wishing I was with you, never mind the wet blobs on the writing paper.

Is this something that can happen here???????????????????????????????

Stiff Day

Was it the thought of putting Christmas decorations back in the roof that enabled Parky to get a grip on me? Perhaps he likes cards all round the place and it does look a little bare now that the twinkling light of the fibre optic trees have been boxed away for next year.

I have said it for several years that my idea of heaven is to escape for Christmas and New Year; I would love to go on a cruise. Nice food nice dancing and shows, all while being looked after and seeing something different when you wake up in a morning.

I don’t really mind where the cruise goes to as long as it’s not in pirate infested water, as it would be extremely difficult to explain that drugs are a big thing in my life. I don’t think they would have the time of day for Parky.

I thought I would just have a sneak at prices, don’t the cruise company’s know that there are a lot of single passengers, I know Parky goes with me 24 7 but I don’t want to pay for him. He doesn’t need his own bed, or come to think of it he won’t be partaking of any food, in fact if he gets really annoying neither will I.

Hospital Fear

I think I am starting to get paranoid about having to ever go into hospital.

One of our Parkinson’s support group members has just rung me as her husband is in hospital; he had a fall and was taken into our local hospital which is 24 miles away. (The same one Parky and I go to)

For the first three days he was not given his Parkinson’s medication which has resulted in a worsening of his condition, it seems that now they are trying to sort this out which means a long stay in hospital.

IF OUR PARKINSON NURSE HAD BEEN REPLACED THIS WOULD HAVE BEEN SORTED.

We are in desperate need of a nurse; she could earn her salary by looking after us at home.

The Hospital Trust has been so short sighted in not providing the backup that is needed, and I am sure if its figures that worry them, they would find it beneficial.  

By the way the piece I have written in capitals is the bit where I am shouting at my computer, no one should have to have their medication stopped.

PLEASE FAMILY AND FRIENDS DON’T LET IT HAPPEN TO ME

Granddaughters Thoughts

I have realised that Parky affects a lot of people around me so I thought that I would from time to time ask others what they think. So the first one is from my 12 year old Granddaughter

“When I first found out that my nanny was writing a blog I just thought that she would help herself understand much more about what she has got and what effect it has on people but as I have read them all I have learnt much more myself .

 As I have grown up with her having Parky by her side I have realised that I need to help as much as I possibly can. When I first learnt to tell the time I look at the clock (when I was staying with her) and I would tell her that she needed to take her tablets.

 Now if she wants to write something and I’m about I would write it out for her. I also walk round to the corner shop to buy things that she needs. So if there was anything that she needed me to do I would do it straight away.

 I immediately know that something is wrong as when I was little she rang wanting to speak to my mum but she was busy so after I had to put the phone down I went to my mum and said “Nanny’s Voice Doesn’t Sound Right” mum rang her back to find out how she was, and that’s how I know that something is wrong as her voice goes all different. “

I don’t think any of us realise how we affect other people’s lives, so it’s quite nice to be aware how they feel.

Parky Came To

Well I suppose it was too much to ask for. How could I possibly go out on New Year’s Eve and not have My Mate Parky with me?

He was very subtle and to give him his due I don’t think anyone else knew he was with me. He made me a bit robotic and I knew from how my face felt that he was with me, but I had a couple of glasses of wine just to show him I could so there.

So now it is 2011, have I made any resolutions?  NO.

Should I make one????????????????????????   NO

I can’t give up chocolate as I still have some left to eat from Christmas.

I don’t smoke, so no good giving that up.

So  a HAPPY NEW YEAR to all of you who have your own Parky living with you, may you get the better of him and start to live with him as a friend and not as a foe.