Great Meeting

Well it is the last Friday in the month so it was Parkinson’s get together day. We had a good turnout.

First it was really good to meet our new support worker, I have a feeling that she is going to be a great help to our members, I am impressed.

Then to make things go a little bit better we had a lady from Healthwatch Lincolnshire, this is an independent local organisation giving everyone a chance to “speak up” about their local health and social care services.

Boy had we got a lot to tell her, from the fact that appointments don’t seem to be set up for seeing your consultant to patients not being told that they no longer have a consultant, as he no longer works at the hospital you attend.

 Worry about medication being monitored is a big concern for us all. The cocktail of drugs we are all on makes for a scary time when you get to see a consultant at best every six months.

This is a rural community and whoever we go and see means traveling, so I know it’s an old plea but doesn’t anyone think a Parkinson’s nurse would help to alleviate the problem. Clinics at doctors or small hospitals would help and I’m sure Consultants would cope better with the patients that they need to see.

I see this as a win win situation.

The best benefit of today was that the Parkinson’s Support worker met the Healthwatch worker  so I hope it is a case of WATCH THIS SPACE

On a Mission

I have just come home after a family holiday at the Italian Lakes. Even if the weather wasn’t always that great we have made the best of it and had a brilliant time.

I even managed to leave Parky behind how good is that, because I was sharing a bed room I had no choice but to go to bed at a sensible time and I have slept longer than I can remember for a long time.

No ending up playing games on the computer, no forgetting tablets because I am wrapped up doing something quite meaningless.

I have taken my pills when the buzzer has gone on my alarm, I have walked miles and been fed regularly. I can’t blame my medication all the time for my bad ways so I am now on a mission.

I am going to try to change my late night habits, no not try I am GOING TO DO IT.

A new way of life starts here