Parky People are the Best

Today was our monthly Parkinson’s meeting; I really look forward to it. To think that when I went to the first one it wasn’t exactly a case of being dragged there screaming and shouting but I had threatened the person who took me that if I didn’t like it I would go to the loo and not come back. That was I think about eight years ago and I’m still going. I have met some incredible people and come to the conclusion that Parky people are some of the best

The person who has run it from the beginning has stepped down so today we gave him a surprise party, in fact I have just eaten a very large piece of fresh cream chocolate cake that I brought home with me.

We are now going to share his job between four of us with different strengths, he has been the person who has made sure we survived and been an inspiration.

My contribution has to be computer based as that is something I enjoy. I am so lucky that no one else wanted to do it. That said I did his thank you card which has meant me trawling through any photo’s I have to use in the card, most it seems taken at Christmas Parties over the years. It looks as if we are always eating.

Watch this space who knows what we will think off to do, might not be another sky dive but I’m sure there must be other things we could do.

High Jacked by Parky

Back home after a very good holiday.

Parky has been around a bit since my return it sure is a case of “GET IT ON TIME”. I really know if I have gone over my pill popping time.

On the way back from the airport we called into a shopping centre, number two daughter and her 3 as they were in one of the shops paying I went to another to look at some shoes. I started to get stiff as I was trying on a pair and my hands didn’t seem to be working properly, so when my eldest granddaughter came to find me I was so relieved. I just passed her my bag and got her to sort everything out for me. (You are a star H thank you so much).

I think that not only my body goes stiff but so does my brain, perhaps that’s when I find it difficult to make a decision or find the words that I know are in my brain somewhere. It’s as if I am looking at a blank space.

I don’t know if I expect too much of myself but I still find it difficult to accept how out of control I feel when Parky has high jacked me. He gives no warning or is it that I haven’t taken heed of him?

Yesterday I was a little late with my lunch time pills felt not to bad so went to the supermarket how can you open one of those flimsy plastic bag then manoeuvre a loaf into it when you’re starting to stiffen. Easy, admit you have Parkinson’s to an assistant and let them do it for you.

Am I at last learning??????????????????

Italy without Parky interfering

Today is the last day of my holiday in Italy with family. It was a very early start the day we flew out and I never really know what to do about pills. I took a chance and had just one of my Stalevos then took my usual cocktail at the usual time and it worked. I have kept my watch at home time without getting too confused. I know I'm not home yet and really shouldn't tempt fate but other than a few stiff times Parky has not interfered YIPPI
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